Monday, 16 June 2014

All Good Things... Weeks 12-14: May 24th-June 16th

For an explanation of this project and blog please click here.
Click on photos to enlarge or see slideshow

All good things come to an end.
I started this blog in March after a sudden, unexplained and totally unexpected major improvement in my illness. It is well known that my illness has flares and remissions. In my case this usually means that I am either "sick" or "very sick".
This time was different. After years of being almost totally housebound I was able to leave my flat for up to an hour at a time without severe repercussions.
I had no idea how long this would last, although sadly it was likely to end at some point. Tomorrow? Next month? Next year? Never? I hardly dared hope. So I didn't think about it. I treated this good patch just like I did my bad patches: one day at a time. I took each day and enjoyed it as much as I could. I hope in doing so that I did this remission justice.

I have now been sick again for 4 weeks straight. I have only been on one "wheelchair walk". Last week I tried to go out as my sister was visiting me. However even very short trips led to me sleeping for several hours and I felt pretty terrible, however much I tried to hide it.

So here I am mostly stuck inside again. I can feel the Common calling to me. Summer is now here and I long to go out and take photos of the green trees. In some ways I feel more claustrophobic than I did before.  But I have no regrets and many happy memories. And who knows? Maybe another remission is just around the corner.

In the mean time life goes on. Being (mostly) housebound is no excuse for not living.
In the past 4 weeks I have organised several board games evenings, had weekly lunches with a friend, seen another friend and her 3 year old for lunch, had church group meetings, 3 weekly film+video sessions with another friend, had my sisters and baby niece over to stay, and celebrated my god daughter's birthday. I've chatted with friends abroad on skype, family on the phone and used social media in one form or another to chat to other disabled people.

I'm gradually sorting through the hundreds of photos taken by various family members during my sister and baby niece's 6 week long visit. I've finished two Future Learn distance learning courses and signed up to another one. I've bought some new fish, and have constructed a completely ridiculous hamster playground (it seemed logical at the time). I'm working my way through several drama series on Netflix. Depending on how well I'm feeling I'm also enjoying audiobooks, kindle books and video games.

So. Sick and fed up of feeling ill? Yes. Confined and wishing I could go out? Yes.
But. Bored? No. Lonely? No. Unhappy? No.

I've thoroughly enjoyed my "wheelchair walks" and I will be delighted if they happen again. But I've adapted to life as a housebound person. And I'm happy. Let no one think otherwise.

My last wheelchair walk with sister and baby niece

End of Project
Click here to go to Week 11
Click here to go to Week 1, Start of Project

Week 11: May 17th-23rd : Return Home

For an explanation of this project and blog please click here.
Click on photos to enlarge or see slideshow

Saturday May 17th:

My sister and baby niece were off to London for a hen party (baby friendly). It was my Mum's birthday and we spent the day going for a walk and later enjoying a good meal together.

Sunday May 18th:

It was finally time for me to return home. I found it really hard to say goodbye to my sister and baby niece. This isn't quite a final goodbye as my sister will come and stay with me one more time before they leave. It was still difficult though. My niece has grown to know me over the past two weeks and it is heartbreaking to know that she will soon return to Australia and I won't see her for another 6 months.

The trip home was again extremely painful and tiring. I am glad my parents don't live any further away.

Monday May 19th-Tuesday 20th:

I had plans to do "stuff" but my body had other ideas. I was awake most of the night being very ill and was not up to much. Twitter was my friend and kept me from feeling too miserable or sorry for myself!

Wednesday May 21st:

Felt a lot better today. I ventured outside for the first time since I got back. Unfortunately I only got as far as the postbox and bank at the bottom of the road before I started feeling extremely ill and shaky and had to come home again.
Nonetheless I was able to do several jobs around the house so did feel that the day was productive. And at least my health appears to be going up rather than down.

Thursday May 22nd:

So much for that. Feeling worse again. On the other hand the weather has decided to turn into bad thunderstorms so I couldn't have gone out even if I had wanted to!

Friday May 23rd:

Still not feeling great. However I went and visited my friend and saw my god daughter and her little sis. Or to put it another way I got in a taxi and then flopped on their sofa for the rest of the day while the kids jumped on me or chatted to me nineteen to the dozen! It was very enjoyable but am still hoping things will pick up healthwise.

End of Week 11
Click here to go to End of Project
Click here to go to Week 10